HYBRID Rett Spectrum Conference Family Education Symposium: Timothy Benke (University of Colorado), Genny Jessee (June Jessee Memorial Foundation), Amy Fox (WashU Surgery), Robin Ryther (WashU Neurology)

October 6, 2023
3:00 pm - 6:00 pm
Zoom/Eric P. Newman Education Center, Great Rooms A,B (EPNEC; Medical Campus)

Timothy Benke: “Multidisciplinary Care for Rett and Rett-related disorders: The Rocky Mountain Way”
Genny Jessee: “Finding Caregiver Wellness Through Community, Support, and Joy”
Amy Fox: “Demystifying G-Tube Use in Rett Spectrum; Family Panel Discussion”
Robin Ryther: “Update on FDA approval for Trofinetide in Rett Syndrome”

The Rett Spectrum Conference Series Family Education Symposium is a free event.

Doors will open at 2:45pm, with speaker presentations beginning at 3:00 PM.

Reception immediately following concluding remarks.

Sponsored by:
The Washington University Department of Neurology / Rett Spectrum Clinic
The Intellectual and Developmental Disabilities Research Center at Washington University
St. Louis Children’s Hospital, Golf FORE! Ellie, International Rett Syndrome Foundation, International Foundation for CDKL5 Research