Timothy Benke: “Multidisciplinary Care for Rett and Rett-related disorders: The Rocky Mountain Way”
Genny Jessee: “Finding Caregiver Wellness Through Community, Support, and Joy”
Amy Fox: “Demystifying G-Tube Use in Rett Spectrum; Family Panel Discussion”
Robin Ryther: “Update on FDA approval for Trofinetide in Rett Syndrome”
The Rett Spectrum Conference Series Family Education Symposium is a free event.
Doors will open at 2:45pm, with speaker presentations beginning at 3:00 PM.
Reception immediately following concluding remarks.
The Washington University Department of Neurology / Rett Spectrum Clinic
The Intellectual and Developmental Disabilities Research Center at Washington University
St. Louis Children’s Hospital, Golf FORE! Ellie, International Rett Syndrome Foundation, International Foundation for CDKL5 Research